A Patent Lie - The IDSA Hearings and the truth

The IDSA hearings in Washington DC
(forced by the anti-trust lawsuit brought on by the courageous Attorney General Blumenthal of Connecticut )have come and gone recently.
Most people didn't even hear about it.
I lamely posted it on Facebook and Twitter hoping to spread the word.
It would have been nice to see it on the evening news .

These hearings were an important first step in recognizing the threat this seemingly
innocuous disease actually has become. It is a complicated and evolving form of bacteria that is easily transmitted and not easy to eradicate once it finds a home inside a human host.
The percentage of people who catch it early enough to have effective treatment is dwindling.
There are many new strains and they are constantly evolving and adapting . new co-infections have been discovered - viruses , bacterium and parasites that complicate treatment and complete recovery. This is NOT the simple disease the IDSA wants you to believe it is.
Many , such as myself and my husband are left with lingering and myriad health problems.
Some of which can prove fatal. People have died from Lyme Disease - it usually is listed as
Heart failure , stroke or other maladies but many are the result of long-term undiagnosed or under-treated Lyme Disease and co-infections. A recent Yale study revealed that 90% of a sampling of brain tissue from Alzheimer victims contained Borrelia Burgdorferi , the bacteria that causes Lyme Disease. This has been seen in those diagnosed with ALS, MS , Bi-Polar Disorder , Lupus , Chronic Fatigue Syndrome and Fibromyalgia as well as many other ' unexplained' illnesses. The evidence is mounting and so are the statistics.
When there are too many of us , change will come.
But what do we do in the meantime when a handful of powerful organizations have hog-tied honest researchers , scientists , doctors and patients who have little to gain from their greed and underhanded censorship ?
What do the sick do until then when the easy cure '30 days of doxycycline' fails us ?
The Hearings were important but nothing has really changed. Yet.
Lyme Disease is epidemic in the continental US the health of thousands are at stake and it seems no one cares . Will anything even come of it ?
The IDSA heard much testimony , including scientific research it had previously refused or banned . Many dissenting viewpoints were heard ( finally ) but this was not a public forum - the IDSA closed it to the public and media . What does this tell you ?
I do not have much hope when the greater public at large is purposely kept in the dark.
This includes well intentioned physicians and health care policy makers.
If the word does not come on down from on high - we will continue to be mis-diagnosed , mis-treated and ignored.
The public is purposely kept in the dark about many illnesses that have patents on them ! This seems ludicrous but i assure you it is true. What's the saying ? " Follow the money "...

No one knows because important information and scientific study is being suppressed by those who have a financial interest ( and hold patents on disease) for a vaccine. If more than one strain exists , if it can hide in the tissues , change form , exist with co-infections than a LYME DISEASE VACCINE WILL NOT WORK ! The public would reject it and all that money and research slotted for it would be lost profit . The first vaccine in the eighties- Lyme Rix was a bomb - it actually caused Lyme Disease in some of the public and was quickly pulled off the market under the PR spin of
" poor sales" . A form of it is still being used on Dogs. A 'salvage'operation?
Flu vaccines run some of the same risks - most people get them without question- whether they are risky or actually effective doesn't seem to matter .
We SHOULD question why .
The government and its institutions like the NIH do not have our best interests at heart even though they were set up supposedly for that very reason . Big business has gotten a hold on every corner of the research dollar . Big Pharma IS Big Brother .
Then there's chronic illness and the healthcare system . Don't even get me started ...
NO ONE wants to pay for it. Long-term treatment for anything is greatly frowned upon.
Private insurance rejects you , HMO's deny claims and paying out of pocket is all that is left.
IF you can find a good doctor who is knowledgeable about tick-borne infections to treat you !
Even then it is precious little. Proper and effective treatment is in its infancy even though these
micro-organisms have been around for quite some time. We are all still just guinea pigs , even when good hearted doctors are trying to heal us and reduce our suffering - they are only guessing without the help of more research and the organizations that SAY they are protecting us.
The new Healthcare Reform , sadly, will do little to change this.
It is a start and reform is needed but a long way from securing health for the public.
Until you take the profit out of health care things will continue as usual , regardless how many more people are 'covered'. This is a truth many are not willing to hear.
Especially , the chronically ill .
We will be left out to go away and quietly suffer - again.
Maybe i am being overly cynical - God knows my outlook is less than rosy these days .
There is no turning back after the fog lifts , that i know .
I wish in some ways i were still ' naive ' .
Ignorance is bliss and all that .

In reality , i am praying and hoping that something , anything will change .
We have to start somewhere .
I have to keep that hope alive , somehow.
For my son .